Definition
Realize defines rehabilitation as any services or activities that address or prevent body impairments, activity limitations, and social participation restrictions experienced by an individual. (Worthington, Myers, O’Brien, Nixon & Cockerill, 2005)
The goal of rehabilitation for people with HIV is to improve quality of life and enable full participation in activities of choice:
- improving health
- improving quality of life
- improving or maintaining physical, social, functional, psychological and vocational potential
- enhancing independence
- preventing health problems from recurring or worsening
- restoring self-esteem, and
- improving self-sufficiency.
Types of rehabilitation
There are several different types of rehabilitation:
Physical rehabilitation
Some of the challenges you face may be caused by changes in your body. Physical rehabilitation can help.
- A physical therapist (physiotherapy) can teach you exercises and physical activities that will help you:
- strengthen your muscles
- improve movement in your joints
- maintain or improve your flexibility, balance and coordination, and
- manage pain.
- An occupational therapist (occupational therapy) can help you learn to manage your daily activities and make adjustments in your home or work place to take into account any physical changes you are experiencing. This could include:
- suggesting changes in your living space to accommodate any physical limitations you have
- helping you learn to use a walker if you need one, and
- suggesting ways of organizing your days to conserve your energy.
- A speech-language pathologist (speech therapy) can help you with issues affecting speech, communication and swallowing.
- An audiologist can help you deal with hearing loss by fitting you with a hearing aid or helping you to find ways to communicate well despite your hearing loss.
- A physiatrist is a doctor who specializes in physical medicine and rehabilitation. A physiatrist can:
- help you regain movement or physical functioning you have lost, and
treat chronic pain.
- help you regain movement or physical functioning you have lost, and
- Some people with HIV also find that complementary or alternative therapies are helpful. These include:
- Acupuncture
- massage therapy
- homeopathy
- naturopathy
- aromatherapy
- chiropractic treatments
- yoga, mediation, tai chi
- traditional healing (e.g. sweat lodge, Sundance)
Psychosocial rehabilitation/support
People living with HIV can experience depression, anxiety, changes in sleep and appetite and reduced sex drive (libido). Self-esteem and relationships can be affected.
- Psychiatrists, psychologists, psychotherapists and mental health counsellors can help. They can:
- provide therapy or counselling
- suggest strategies and techniques to relieve anxiety and stress
- connect you with peer support groups, and
- prescribe medication, if necessary (psychiatrists only).
- Social supports such as friends, family, cultural and other community organizations can also provide both emotional and practical support.
Vocational rehabilitation
- Staying in the workforce, or returning to the workforce after a period of illness, is often complicated if you have HIV:
- You may be concerned about how you will be treated if people find out you are HIV-positive. (See our Workplace Disclosure Decision Guide)
- You may not have the stamina to work full-time and your workplace may not be able to accommodate part-time hours.
- If you have been on long-term disability and return to work, you may be concerned about income or health benefits if you get sick again.
- Vocational rehabilitation programs and some HIV service organizations provide:
- training and employment counselling
- job search and interview skills
- counselling about income support, health and disability benefits
- information about your legal rights, and
- advocacy on your behalf.
What is Rehabilitation Resources
Optimal Health and Wellbeing for People Living with HIV: The Role of Health Systems
In July 2021 Jeffery Lazarus et al. published the Consensus statement on the role of health systems in advancing
the long-term well-being of people living with HIV (“the statement”) in the journal Nature. The development of this
global statement involved participation from HIV experts from around the world, including two representatives from Canada. The statement culminated in six ‘key next steps’ to be taken by health systems to advance the long-term wellbeing of people living with HIV.
Realize, in collaboration with Gilead Sciences Canada Inc., and the National Community Advisory Group on
Optimal Health and Wellbeing (NCAG)*, coordinated six deliberative dialogues to determine whether the global
statement resonated with people living with HIV in Canada, and whether there are any modifications that should be made to ensure the ‘key next steps’ are relevant in the Canadian context.
This Report (Consensus Statement companion document) is the culmination of the deliberative dialogue process.
An Innovative Rehabilitation Delivery Model – Accessing Rehabilitation for People Lliving with HIV/AIDS
Presentation: Accessing rehabilitation for people lliving with HIV/AIDS – an innovative rehabilitation delivery model. Authors: Dawn James, MOT, OT REG (MB) and Tara Carnochan, MA, Nine Circles Community Health Centre.
CWGHR Self-Management Card: Exercise
Info-Card: Self-Management Tips – Exercise, HIV and Hepatitis C. Author: CWGHR.