Long COVID is an episodically disabling condition and
as more people are returning to workplaces, Realize
hosted a National Deliberative Dialogue to highlight the
impact that Long COVID has on people and their work.
We also wanted to explore the effects of Long COVID on
workplaces, accommodation, and employers.
This was a hybrid event held on September 23, 2022.
Recommendations for Employers, Insurers, Human Resource Personnel and Rehabilitation Professionals on Return to Work for People Living with Long COVID
This is a living document that is continually updated based on emerging evidence in the field. The reference list provides scientific support to statements within the document and hyperlinks provide an enriched understanding of concepts that will reach the broader public.
International Coalition of Older People with HIV (iCOPe HIV)
Equitable health outcomes for aging and older people living with HIV will only be possible if we work in collaboration. Those of us with lived experience and living expertise must be at the centre of any decision or action taken in response to our self identified needs. We call on healthcare providers, researchers, community based HIV organizations, frontline providers of ageing related services, and policy and decision makers to work in partnership with us to fund and implement the following calls to action… Follow the link for the full manifesto.
Annual Report; Realize 2022
The Think Tank was held virtually over Zoom. To facilitate participant engagement in small and large group discussions, invitees were divided into two groups and the event was held over two afternoons on February 17th and 18th, 2022, 1:00-3:00pm ET. Twelve people attended each day. Attendees included people with living experience of HIV and pain, researchers, clinicians, policy makers, educators and others whose contribution is central to a clearer understanding of the landscape of chronic pain and HIV in Canada. Each person had some connection to the topic of chronic pain, whether through lived experience, education and/or occupation.
A Report on the 2022 Survey of Certified Human Resources Professionals Regarding Episodic Disabilities
This report, and its predecessors in 2020 and 2006, was developed as part of an ongoing
assessment of the existing knowledge of Human Resources (HR) professionals across Canada about Episodic Disability in the workplace; and the gaps in both training and experience that may be barriers to a culture of accommodation in their work environments. Human Resources professionals across sectors are uniquely positioned to both advocate for employees, and to engage leadership to provide appropriate support to their team members living with Episodic Disability. HR professionals play a pivotal role in ensuring that people living with episodic disabilities are recruited, retained, or are able to return to the workplace should they require time away.
The 2022 Episodic Disability Survey for Human Resources professionals (Appendix 1-2), was
designed to gather input on experiences of episodic disability in the workplace, as well as on
activities and tools, that support Human Resource Professionals. This information will assist in
building awareness and will help inform the creation of a National Action Plan on Episodic
Disability and Employment.
Project Report; Realize 2021
The Pandemic Pandora’s Box report analyzes the combined findings of two informal, community-driven surveys shared openly online in February 2021. The first asked adults working or seeking work in Canada about their experiences with Long COVID, while the second asked Canadian employers about their comfort level and preparedness to provide workplace accommodations to COVID-19 long-haulers. Up to 1 in 3 people who contract COVID-19 – regardless of the severity of their acute infection – risk facing Long COVID. Long COVID refers to a multitude of fluctuating, debilitating symptoms that may affect all organ systems and for many cause impairments which last for months.
The Pan-Canadian Research Agenda on HIV, Aging and Older Adulthood is a tool created by the National Coordinating Committee on HIV and Aging to guide decision-making by four interested parties:
1) Research Funders and Grant Review Committees
2) Principal Investigators and Research Team Members
3) Policy Makers and Policy Change Advocates
4) Institutions, Residential Care Settings and Community-Based Organizations
The recommendations are relevant to stakeholders engaged in most types of HIV- and aging-related
research and evidence production, including epidemiological studies, community-based research
projects, biomedical and clinical trials, implementation science initiatives and program evaluation.
There are two notable exceptions. The NCC does not have the expertise to make recommendations
regarding priorities for basic science research and drug development.
This virtual presentation, made as a poster to the Canadian Association for HIV Research annual conference in 2022, outlines the social benefits to older adults living with HIV on HIV and aging well.